It was a warm sunny day in May 1997 when I was awarded my
master’s degree from Rutgers University. I was filled with a great
sense of relief and an incredible feeling of accomplishment.
Three and a half years had passed since I first returned to school
to finish my undergraduate degree and eventually earn a Master’s
Degree in Social Work. My studies were finally over. At 56 years
old I was about to begin a new career. The most challenging years
of my life were behind me. Or so I thought.
A month after graduation I went in for a routine physical. To my
dismay I discovered I was in serious renal failure. My blood
creatinine level was 2.8, more than double the number for normal
kidney function. The diagnosis threw me for a loop, but my
condition hadn’t exactly come out of the blue. In 1972 I was told
that I had minor symptoms of kidney disease that could
eventually lead to kidney failure. But it was a slow deterioration,
and my doctors reassured me that it would be many years before
I would need more radical treatment. In fact, my kidneys had been
stable for so long, I almost forgot about my condition.
This time, my doctor immediately referred me to a nephrologist for
renal care. I was barely able to enjoy the fruits of my academic
accomplishments when my life took this dramatic turn.
After adjusting to the shocking news, I quickly focused on
participating in my treatment. I learned that following a strict renal
diet could help preserve my remaining kidney function. The
discipline I so strongly relied upon to complete my education
was to become an integral part of my life again. I immediately
searched the Internet and libraries to learn as much as I could
about my disease. I followed a very strict renal diet and began
jogging 6 days a week. A few months later, I began lifting weights
to maintain my strength. I kept dailyblood pressure graphs for my
doctor to help him manage my hypertension. I was determined to
do everything in my power to stay as healthy as possible so I could
continue the pursuit of my new career.
I was determined to do everything in my power to stay as healthy as possible so I could continue the pursuit of my new career
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A year passed. My health was still my major focus. And my
commitment to preserve my kidneys was stronger than ever. My
nephrologist began inviting doctors-in-training to sit in with us
during my visit. “The most compliant patient I know,” he would say.
I followed the diet so rigidly that my 6'3" 205-pound body was
down to 177 pounds. Unfortunately, to the surprise of my doctor,
my condition continued to deteriorate.
I do believe that my involvement in my treatment gave me a sense
of participation that helped me avoid becoming depressed. At
times I felt down, but jogging, weight lifting or planning a
meal helped me stay focused instead of feeling helpless. I had no
control of my kidney function. But I did have control over
participation in my treatment.
Still, I tried to live my life as normally as possible. We traveled to
Europe. My nutritionist didn’t think 1 week of regular food would
be a problem. However, after only 3 days my ankles began to swell.
Since cooking is one of my hobbies, it was a challenge eating
lettuce sandwiches instead of delicious-looking ethnic food while I
was on vacation. It wasn’t until after I returned from an RV
vacation in Alaska that my nephrologists advised, “No more exotic
trips.”
The winter of 1998 was long and cold for me. I wore thermal
underwear under a sweater and used an electric heater under the
desk in my office to keep warm. My clients frequently
suggested that I lower the heat. I often had leg cramps, hiccups
and was awake for 3 to 4 hours every night. Even though I was
exercising daily I felt weak and tired. My body was slowly dying.
It became clear that I was not able to prevent total renal failure
and my doctor and I discussed other options. He recommended
that I consider a transplant.
Janet, my devoted wife, immediately volunteered to be tested as
a possible donor. Although she had never been a patient in a
hospital, she was so determined that she had no hesitation
about voluntary surgery. She was thrilled when she discovered
that she was qualified to give me an opportunity for a normal
life again.
Fortunately, my former training in mind and body healing was a
great help in managing the transplant procedure. We prepared for
surgery with tapes that helped us to relax and focus on enjoying
this special event. We worked hard at finding value in every
moment. We even brought video and still cameras with us to the
hospital. As a result of our special preparation beforehand, it felt
more like we were going on vacation rather than into the
hospital for major surgeries. On March 30, 1999, we shared in a
way very few couples ever do. With the help of our wonderful
doctors and staff, Janet gave me her left kidney.
Because of our mind and body healing preparation, my wife and I were released from
the hospital in just 3 days.
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Because of our mind and body healing preparation, my wife and I
were released from the hospital in just 3 days. “Remarkable” was
one doctor's comment about our rapid recovery. The nurses could
not remember when a transplant patient was discharged
in 3 days. “You came in with a healthy mental attitude that made
a difference,” a nurse stated.
The following weeks were quite moving. I am extremely happy
that we have a record of our experience. One of our most
cherished photos is a picture of my new kidney before it was
transplanted into my body. Even today, watching the edited video
brings back the precious feelings of that wonderful event.
As much as I read about the emotional experience of a spouse
donating an organ, the event was infinitely greater than I could
ever have anticipated. Tears would well up in our eyes whenever
we spoke about the gift that we both share, and how it changed
our lives. I was able to eat normally again. The cold body I lived
with during the winter was warm again. I was sleeping normally
and regaining my strength. My relationship with my wife was
stronger than ever. Having a transplant changed my life in
so many ways. As a result, I value life so much more these days.
And my self-confidence is soaring.
My wife and I just celebrated our 6-year transplant anniversary.
My kidney transplant enabled me to continue my dream of a new
career. For 26 years, I worked as an industrial pipefitter for a
pharmaceutical company. Now, I am a Licensed Clinical Social
Worker in my own private practice. The experience of managing
my own disease and subsequent surgery helps me greatly in
my work as a therapist specializing in pain management. It gives
me immense satisfaction to share my knowledge and experiences
with patients who are managing their own medical challenges.
A gift of love that I can never repay.
With sincere gratitude I will always remember the care we
received from the medical team as well as the support
from our family and friends. Also, I am indebted to so many
people that I will never meet. My second chance at life was made
possible by continuing contributions from the medical and
pharmaceutical community. For 26 years my employment with a
pharmaceutical company gave me my financial support. Now, and
for the rest of my life, the medications they provide are my life
support.
Most important to me is my wonderful wife, Janet, who gave me a
gift of love that I can never repay. As Ralph Kramden has often
said to Alice in the classic TV show, The Honeymooners,
“Baby, you are the greatest.”
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